As a parent, from the moment your child enters the world, you strive to provide the best life for them. There are always obstacles to overcome in day-to-day life. However, when a parent learns their child is medically fragile, these day-to-day activities become additionally challenging. Due to medical research and advances, many of these children can live at home, but not without significant challenges to overcome.

In this episode, we meet Jenny and Darin Iacobelli. Jenny and Darin’s daughter, Nola was diagnosed with Cardiofaciocutaneous Syndrome at just 1 year old. The disease is very rare—only 400 children in the world have been diagnosed. The Iacobelli’s are able to maintain their family and lifestyle despite the stress and challenges. They are truly role models to families everywhere.

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